Children and Young People
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Essex and Southend LINk have created a protocol document for use in schools. The document provides guidance on caring for children with diabetes so that children with diabetes can fully participate in activities in school. The document also provides guidance for schools to comply to the Equality Act, DDA and DED.
This service has developed structured education courses for children and young people wishing to use a basal bolus insulin regimen. The programme uses the ideas of teaching people how to safely adjust insulin doses from adult courses but presents them in a manner appropriate for younger age groups. Children, young people and their families have benefited from the courses by learning from each other in a group environment.
The aim of the project was to reduce the salt intake in children and adults, by empowering and motivating them to make healthier choices and it consists of two parts. The first part is to provide teachers of primary school in years one and two with resources and lesson plans on salt focussed healthy eating teaching to deliver in the classroom. The second part is dietitians to take parents of the schoolchildren on local store tours with an emphasis on education about the associated risks of a high salt diet and the importance of understanding and reading nutrition labels.
The ‘MICKY&S’ pilot structured education project was developed to make a real difference to the lives of children with diabetes. ‘MICKY&S’ empowers families to match insulin doses to carbohydrate intake, affording significantly improved freedom and choice in eating. The programme can have a profound impact on biomedical outcomes as well as improving quality of life and satisfaction.
The children diabetes services in Dartford bring an holistic approach to caring for children diabetes. There are 3 main clinics:
Weekly, consultant led one stop multi-disciplinary clinics
Monthly nurse led, consultant supervised multi-disciplinary annual review clinics
Quarterly transitional clinics
The team also provide an 'open passport' system so children and their family have access to support at any time of any day.
A Pilot Project to develop and implement an Expert Patient Programme for young people with Diabetes was set up in Autumn 2005. The four workshops that were designed for ‘young people by young people’ and named ‘Getting Sorted’ were delivered in September through to November 2006 by young adult facilitators who had diabetes. This was with a view to it being replicated throughout the UK, and having the aim of positively impacting on the health and wellbeing of young people who have long-term conditions by providing an environment for peer support.
A young person's diabetes service that includes a dedicated young person's nurse role, education sessions and informal social gatherings.
The development of a structured education programme appropriate for young people aged 11-16 , based on the recognised structured education programme DAFNE for adults.
A service to provide supported home management at diagnosis and during illness and easy access to consistent advice either via home visits, clinic visits or telephone line, age appropriate education in a stress free environment, education to school staff and a peer support group focused on fun .
The Yorkshire Register of Diabetes in Children and Young People is a specialist population based register containing demographic and clinical details for more than 5500 children and young people diagnosed with all types of diabetes, since 1978.
The provision of home management and education of children and families when they are newly diagnosed with diabetes living within the Birmingham area
Summary: An information resource for schools, nurseries and education establishments to enable staff there to feel more confident in supporting the children and young people with diabetes under their care.
The resource takes the form of an attractive and easily accessible calendar
The calendar contains different sections including: Sick day rules at school, including DKA, management and treatment of low blood sugars, aims and recommendations for the management of childhood diabetes, discrimination issues and psychosocial issues to mention a few
Summary: A Young Persons Diabetes Team (YPDT) exists that is made up of a committed multi-disciplinary team.
A clear pathway has been established of the care from paediatrics to young persons service, and this was developed with service users.
Leaflets have been produced which detail important, relevant information regarding transfer and what to expect.
All services are available on one site, and the clinics are held weekly, in the evenings to improve accessibility. Non attenders are followed up, and phone calls and letters are made the week prior to appointments to encourage attendance.
Survey results are available.
Summary: A Young Adult Diabetes clinic where adult and paediatric staff work together on one site to facilitate a smooth transition between paediatric and adult services.
A transition plan is developed by age 14, and this is reviewed at least annually thereafter. The details of the actual transition process are negotiated and revisited over time. At age 14 young people transfer to the adolescent clinic.
At age 16, negotiation begins regarding transfer with the young person, their family and other relevant health professionals. Age of transfer is decided on a case by case basis.
The young person has a final transfer home visit in the year running up to their final transfer to adult services, and this includes talking through what to expect from adult care at the chosen adult service.
There are plans to evaluate the patient experience and this is currently being worked on.
Summary: FACTS aims to improve self management skills by encouraging teamwork.
The programme looks at carbohydrate counting, blood glucose testing and insulin dose adjustment.
The programme encourages through its teamwork approach, the gradual and negotiated transfer of responsibilities for self-care between parents and adolescents.
Each healthcare professional has received training and evaluation in the delivery of group education by an experienced health psychologist.
The programme was evaluated using a wait-list randomised control study and preliminary data is available.
Summary: Based in the Tayside area.
A text messaging service for children to provide support between clinic visits to facilitate the uptake of insulin therapy.
The project aims to promote empowerment and self-efficacy.
The project included a randomised control trial.
82 per cent of patients felt that it had helped their diabetes self-management.