People living with diabetes should have eye screening as part of their diabetes checks. This is because diabetes can lead to eye problems, such as diabetic retinopathy.
Due to the coronavirus pandemic, eye screening services across the UK were paused for most people. This means you may have had to wait longer than usual for your routine diabetic eye screening appointment.
Eye screening has been restarted in some areas, but will have reduced capacity to make sure it's delivered safely. This means that appointments will be prioritised to those most at risk of sight loss, including:
- pregnant women
- people who already have eye problems (background or more advanced retinopathy)
- those who have recently been diagnosed
- if you haven't had any screening in the past.
If you are invited to a screening appointment it’s really important you go. All clinics will be using personal protective equipment (PPE), but we understand that you may feel worried about going in. If you have any concerns, contact your healthcare team before your appointment.
If you notice any changes to your eyesight, these should be checked as soon as possible – gradual changes can be checked by your optician, but if you notice any sudden changes get urgent medical care.
If your most recent screening test result showed no signs of retinopathy, this means you are in the group of people with diabetes who are lowest risk of retinopathy. Evidence gathered over several years shows it is now safe for you to wait up to 24 months between screening appointments. There is very little chance you will develop sight-threatening retinopathy between appointments.
“Going into the hospital for my eye screening, I felt I was in safe hands. The team who saw me took every precaution to remain Covid safe, they were keen to help and happy to see me. The other patients and I were all socially distanced, I saw all surfaces were cleaned before I was examined and everyone wore masks. I haven’t had my results back yet, but I am pleased I went. The NHS is open and there to support people living with diabetes, so if you’re offered an appointment, I urge you to take it up.”
- Josh, who recently attended his eye screening appointment
Preventing eye problems
If you are feeling anxious about having to having to wait longer than usual for your appointment, we’re here for you.
Although eye screening is normally carried out once a year, there is good evidence to show that it is safe for people with no retinopathy to wait longer between screenings.
If you do notice any changes in your vision, it’s important that you call your GP straight away and explain your situation. If you can’t get through, call 111 for advice.
Why is diabetic eye screening important?
Eye screening is an important part of managing your condition, regardless of the type of diabetes you have. This is because having diabetes can mean you’re more at risk of developing eye problems, such as diabetic retinopathy. This can sometimes lead to sight loss.
As diabetic retinopathy doesn’t show any symptoms in the early stages, it can become quite advanced before you start to notice it. Going to your routine eye screening can help you spot and treat diabetic retinopathy early, which should prevent it from progressing to a stage where it’s more difficult to treat.
“There's so much diabetes everywhere nowadays, it's so important people are aware of all the complications that can happen.”
- Jaswinder has sight loss due to diabetes.
What is eye screening?
Eye screening is a way of spotting eye problems before you notice any changes to your sight.
Everyone living with diabetes over the age of 12 will get an invite to a regular eye screening. Eye problems are very rare in children younger than 12 years old, so that’s why they don’t automatically get this check.
At first, the screening should be every year, then this can change depending on your results.
At your eye screening, your healthcare professional will look for signs of eye disease caused by your diabetes. The aim of your regular eye screening is to catch any issues early on. This way you can get the treatment you need in time.
It’s important to know that this type of eye screening isn’t the same as a regular eye test with an optician. You still need to have regular eye tests, as they check for lots of other problems.
You will start by having a quick check of your eyes, which will be followed by the main part of the eye screening. This is when the back of your retina is photographed.
You may get eye drops to make your pupils bigger. These eye drops may sting, but the screening as a whole should not be painful. Your vision will be blurry after the drops, and you will find this makes it difficult to focus on objects close to you. This can last for up to six hours, so it’s a good idea to bring someone with you to take you home. You may also find that everything seems brighter than usual, so you may want to bring sunglasses for after the screening.
You'll have photos taken of each eye and both times there will be a flash of light. Your eye won't be touched by the camera and you shouldn't experience any pain.
While it’s important to have an eye screen, you can choose not to have it. But we recommend that you do. It's part of your routine checks and could help you avoid serious complications.
You will get a letter with your results from your eye screening within six weeks. When you get them you will see an 'R' followed by a number. The R stands for retinopathy and the number tells you how much damage, if any, has been done.
Depending on what your results say, you will have different steps to follow.
Your next steps
No retinopathy (R0)
Continue your regular eye screening
Background changes (R1)
You may be asked to return sooner
Non-proliferative retinopathy (R2)
More regular eye screenings
Proliferative retinopathy (R3)
You will be seen by an eye specialist quickly and taken through your treatment options
You might also see an 'M' which stands for maculopathy. This is when fluid builds up in part of your eye. Once again there will be a number which will tell you your result. M0 means there is no reason to worry yet and M1 means that you will need treatment for maculopathy.
If you’re not sure what the results mean or have any questions about what to do next, speak to your local eye screening service. Make a note of the results and get to know what they mean - it’s important that you understand any changes and what you can do to prevent them getting worse.
You are more likely to reverse any eye damage if you find it early on. That is why going to regular eye screening appointment is essential.
Your regular eye screening will help you keep track of how your eyes are doing. But there are steps you can take to reduce your risk of developing serious complications too. These include:
- looking out for any changes to your sight e.g. floaters, dimmer vision, struggling to see in the dark
- knowing your target blood sugar levels
- keeping on top of your blood pressure and cholesterol levels
- eating a healthy diet
- being active
- giving up smoking.
If you do start to develop eye problems, your healthcare team can support you and talk to you about your treatment options. It’s important to remember that you can prevent them from getting worse if they’re spotted early enough.