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Type 2 diabetes Priority Setting Partnership

Tell us what you think and change lives

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Diabetes UK is looking for the Top 10 research priorities of people with Type 2 diabetes, carers and healthcare professionals. We want to give you a louder voice in research. Whether you’re a research expert or not, you can take part.

We want ideas and thoughts from people with lots of different experiences and backgrounds. We want to hear about your experiences of Type 2 diabetes: write about something that's important to you, that you don’t know the answer to. 

 

We need you

We can’t do this alone. We need you to tell us what questions about Type 2 diabetes you most want answered by research.

What’s important to you when it comes to Type 2 diabetes research?

If you would like to have your voice heard, read our frequently asked questions and watch this space for the second stage of the process.

The first survey has now closed. Thank you to all who took part: the second survey (where we will ask people to prioritise the submitted questions) will open in early 2017.

 

What will Diabetes UK do with the results? 

The Top 10 priorities will help Diabetes UK decide what Type 2 diabetes research it should fund. The charity will make sure that other organisations that fund research know how important your priorities are. This way, we can make sure that research is relevant to people dealing with Type 2 diabetes every day. 

How will Diabetes UK store and use the information that I give them? 

You can’t be identified from your answers and the information you provide will be kept secure. Diabetes UK will only collect your contact details if you would like to take part in the next phase of the process. If they have your details, they can also tell you about the results. They will not use your details for fundraising purposes or pass them to any other organisation.

Do I need to write a question about research and check that it hasn't already been answered by previous research? 

No, you can write about something that’s important to you, that you don’t know the answer to. We will turn your responses into research questions and check that they haven't already been answered by previous research. 

 

Why this matters

No-one understands Type 2 diabetes better than those who live with the condition or care for those that do every day. This will help researchers to take your valuable views on board. 

  • Several other medical charities have already seen the major benefits of carrying out a Priority Setting Partnership like this.
  • It will encourage investments in research. It will help us to set the right agenda for diabetes research, and call to other funders who recognise this priority setting process. 
  • It will direct research to where it’s needed most, by highlighting the top unanswered questions. 
  • It makes sure research isn’t duplicated, by only including questions that haven’t already been answered in the Top 10.

How it works

The first survey was open from mid-May until mid-September 2016. After this, we’ll check that the questions haven’t already been answered by existing research and create a long list of priorities. People who provided their contact details during the first stage will be invited to rank this long list, to create a short list. We’ll then hold a final workshop to agree the Top 10. 

 

Who’s involved?

The Priority Setting Partnership is funded by Diabetes UK, and will be guided and overseen by a steering group. The steering group includes people living with Type 2 diabetes, healthcare professionals, Diabetes UK and the James Lind Alliance. 

  • Mick Browne, Patient representative
  • Emily Burns, Diabetes UK
  • Desiree Campbell-Richards, Research Nurse at Newham University Hospital 
  • Ali Chakera, Consultant at the Royal Sussex County Hospital in Brighton
  • Katherine Cowan, James Lind Alliance Advisor
  • Ann Daly, Independent Information Specialist
  • Andrew Farmer, Professor of General Practice at the University of Oxford and associate general practitioner at South Oxford Health Centre
  • Sarah Finer, Senior Lecturer and Honorary Consultant, Barts and the London School of Medicine and Dentistry, and Barts Health NHS Trust
  • Martin Jenner, Patient representative
  • Davina Krakovic-Patel, Diabetes UK
  • Paul McArdle, NIHR Clinical Doctoral Research Fellow and Lead Clinical Dietitian at Birmingham Community Healthcare NHS Trust
  • Leanne Metcalf, James Lind Alliance Advisor
  • Anna Morris, Diabetes UK
  • Simon O’Neill, Diabetes UK
  • Paul Robb, Patient representative
  • Elizabeth Robertson, Diabetes UK
  • Krishna Sarda, Diabetes UK
  • Kamini Shah, Diabetes UK
  • Jenny Stevens, Patient representative
  • Angelina Whitmarsh, Patient representative

This survey is anonymous – you won’t be asked for your name. Diabetes UK is using SurveyMonkey to collect the responses online, and we’ve set up the survey so that the IP address of your computer won’t be collected when you submit your responses.

When you submit your survey responses, you’ll be taken to a page on the Diabetes UK website where you can let us know if you’d like to take part in the second phase next year. If you’d like to join in the second phase, we’ll ask you to provide your name and email address, which we’ll only use to contact you in relation to the Priority Setting Partnership.

If you do want to join in the second phase, your name and address will not be linked to your responses to the first phase survey, so your answers will still be anonymous.