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Advice for people with diabetes and their families

Diabetes research can’t happen without the help of people living with diabetes.

You can play a vital role by taking part in a research study or trial.

Scientists need your help to prevent diabetes, find new treatments, improve care, and ultimately, stop diabetes in its tracks.

But before new treatments can benefit people living with diabetes, they must be carefully tested to work out if they're safe, what the side effects are and whether they're better than treatments we already have. By volunteering to take part, you could play a crucial part in the fight for a world where diabetes can do no harm.

You can get involved in research at any time, but did you know many clinical trials testing new treatments to stop Type 1 diabetes in its tracks can only recruit people within the first six months of their diagnosis?

  • ADDRESS-2 is meeting the challenge and recruiting people with Type 1 diabetes to clinical trials pioneering new immunotherapies to slow or stop Type 1 in its tracks.
  • The Type 1 diabetes Immunotherapy Consortium (T1D UK) brings together researchers from across the UK to run trials that develop and test new immunotherapies.
  • TrialNet is an international network of leading academic institutions, scientists and healthcare teams dedicated to the prevention of Type 1 diabetes, by working with both people living with Type 1 diabetes and their families.

Whether it's a clinical trial, an interview or a questionnaire, research breakthroughs can only happen with your support. 

We list opportunities for getting involved here. If you would like to take part in a clinical trial, you should always consult your healthcare team and speak to the healthcare professionals involved in the study. 

All clinical trials are reviewed to ensure they are fair to participants and have the necessary ethical approval before advertising on this page. 

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Stress hormones and risk of Type 2 diabetes

Subtitle:
Stress hormones and risk of Type 2 diabetes
Institution:
University of Birmingham
Location:
Birmingham
Tags:
Clinical trial
Dates:
October 2019
December 2021

Researchers at the University of Birmingham would like to invite people with Type 2 diabetes, aged 40-80 years who manage their condition with diet, to take part in a study exploring the link between Type 2 diabetes and making too much of the stress hormone - cortisol.

Participants will be asked to attend one visit at the Queen Elizabeth Hospital Birmingham, lasting approximately 2 hours.

Barriers and enablers to attending your eye screening

Subtitle:
Enabling diabetic RetinOpathy Screening: Mixed methods study of barriers and enablers to attendance (EROS study)
Institution:
City University of London
Location:
London
Tags:
Interview
Dates:
November 2019
November 2020

Researchers at City University of London would like to recruit young adults (18-34 years) with type 1 and type 2 diabetes who have attended at least one diabetic eye screening appointment to take part in an interview. The aim of the study is to find out what makes people attend their screening and identify any barriers to attending.  

How do young adults with type 2 diabetes feel about public health campaigns?

Institution:
University College London
Location:
UK-wide
Tags:
Interview
Dates:
April 2020
June 2020

Researchers at University College London want to explore how young adults in the UK with type 2 diabetes feel about public health campaigns that focus on healthy eating, body weight and the prevention and impact of type 2 diabetes.

Online therapy to support people with type 2 diabetes and anxiety and depression

Subtitle:
A pre-post intervention study to investigate the effectiveness of diabetes specific online therapist delivered cognitive behavioural therapy (CBT) for people with type 2 diabetes
Institution:
Ieso Digital Health
Location:
Online study
Tags:
Clinical trial
Dates:
December 2019
December 2020

Researchers at Ieso Digital Health would like to recruit people aged 18 years or over who have been diagnosed with type 2 diabetes for at least 12 months and who live with anxiety or depression to take part in an online study. It aims to find out whether a course of online cognitive behavioural therapy can help to treat diabetes-related anxiety and depression, and have a positive impact on mental well-being and diabetes self-management. 

Healthcare professionals and cyber victimisation

Subtitle:
Healthcare professionals and cyber victimisation
Institution:
National Centre for Cyberstalking Research
Location:
UK-wide
Tags:
Questionnaire

Researchers at the National Centre for Cyberstalking Research (NCCR) would like to recruit GPs in the UK to take part in a study, to examine their perceptions on the impact cyber victimisation (cyberharassment, cyberstalking, cyber disability hate incidents) has on people living with chronic conditions or disabilities.

If you are interested in taking part, contact NCCR@beds.ac.uk for information.

Helping young people with Type 1 diabetes produce their own insulin - USTEKID trial

Subtitle:
Helping young people with Type 1 diabetes produce their own insulin - USTEKID trial
Institution:
Cardiff and Swansea Universities
Location:
UK-wide
Tags:
Clinical trial
Dates:
December 2018
December 2022

Type 1 diabetes is caused by the body's own immune system damaging the cells in the pancreas that make insulin. Researchers at Cardiff and Swansea Universities would like to develop a treatment that can slow this process down, by targeting the immune cells causing the damage.

The impact of type 1 on diet and quality of life in children

Subtitle:
Evaluation of the impact of type 1 diabetes on diet-related quality of life
Institution:
University of Leeds
Location:
Online study
Tags:
Questionnaire
Dates:
February 2020
August 2020

The University of Leeds are looking for parents and carers of school-age children living with type 1 diabetes to take part in a survey that aims to investigate the impact of type 1 diabetes on the diet-related quality of life. Children should not have any other conditions that affect their diet or quality of life. The results will help the researchers to design an intervention to improve diabetes self-management in children.

Studies for children and young people with diabetes

Subtitle:
Studies for children and young people with diabetes
Institution:
British Society for Paediatric Endocrinology and Diabetes
Location:
UK-wide
Tags:
Clinical trial Connect with researchers Questionnaire Interview

 

It’s really important that young people and families have opportunities to take part in research. A portfolio of studies currently underway and looking to recruit people across the UK can be found on the British Society for Paediatric Endocrinology and Diabetes website.

Families interested in taking part in any of the studies can contact the relevant research teams provided within the descriptions.

Discover research opportunities in North West London

Subtitle:
Discover research opportunities in North West London
Institution:
North West London
Location:
England - London
Tags:
Connect with researchers

Discover is a register of adults living in North West London who are interested in and want to find out more about health research opportunities. The register is for both healthy people and those with a medical condition. Research could relate to any condition, including diabetes, and can range from answering surveys to having your blood tested, to testing new medical devices or phone apps, and participating in clinical trials.

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