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Advice for people with diabetes and also their families

Diabetes research can’t happen without the help of people living with diabetes.

You can play a vital role by taking part in a research study or trial.

Scientists need your help to prevent diabetes, find new treatments, improve care, and ultimately, stop diabetes in its tracks.

But before new treatments can benefit people living with diabetes, they must be carefully tested to work out if they're safe, what the side effects are and whether they're better than treatments we already have. By volunteering to take part, you could play a crucial part in the fight for a world where diabetes can do no harm.

You can get involved in research at any time, but did you know many clinical trials testing new treatments to stop Type 1 diabetes in its tracks can only recruit people within the first six months of their diagnosis?

  • ADDRESS-2 is meeting the challenge and recruiting people with Type 1 diabetes to clinical trials pioneering new immunotherapies to slow or stop Type 1 in its tracks.
  • The Type 1 diabetes Immunotherapy Consortium (T1D UK) brings together researchers from across the UK to run trials that develop and test new immunotherapies.
  • TrialNet is an international network of leading academic institutions, scientists and healthcare teams dedicated to the prevention of Type 1 diabetes, by working with both people living with Type 1 diabetes and their families.

Whether it's a clinical trial, an interview or a questionnaire, research breakthroughs can only happen with your support. 

We list opportunities for getting involved here. If you would like to take part in a clinical trial, you should always consult your healthcare team and speak to the healthcare professionals involved in the study. 

All clinical trials are reviewed to ensure they are fair to participants and have the necessary ethical approval before advertising on this page. 

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Region
Type of diabetes
Type of study

Matching people with diabetes to the right research

Subtitle:
Matching people with diabetes to the right research
Institution:
British Research Panel
Location:
UK-wide
Tags:
Connect with researchers

Researchers across the country are looking for people living with diabetes to take part in their research. Meanwhile, people with diabetes are also looking for projects to take part in, but it can be difficult to find a match. That’s where the British Research Panel comes in: matching scientists to people with diabetes. It’s free to join and doesn’t commit you to take part in any studies. They’ll let you know when a relevant clinical trial is happening close to where you live.

Discover research opportunities in North West London

Subtitle:
Discover research opportunities in North West London
Institution:
North West London
Location:
England - London
Tags:
Connect with researchers

Discover is a register of adults living in North West London who are interested in and want to find out more about health research opportunities. The register is for both healthy people and those with a medical condition. Research could relate to any condition, including diabetes, and can range from answering surveys to having your blood tested, to testing new medical devices or phone apps, and participating in clinical trials.

Helping young people with Type 1 diabetes produce their own insulin - USTEKID trial

Subtitle:
Helping young people with Type 1 diabetes produce their own insulin - USTEKID trial
Institution:
Cardiff and Swansea Universities
Location:
UK-wide
Tags:
Clinical trial
Dates:
December 2018
December 2022

Type 1 diabetes is caused by the body's own immune system damaging the cells in the pancreas that make insulin. Researchers at Cardiff and Swansea Universities would like to develop a treatment that can slow this process down, by targeting the immune cells causing the damage.

Stress hormones and risk of Type 2 diabetes

Subtitle:
Stress hormones and risk of Type 2 diabetes
Institution:
University of Birmingham
Location:
Birmingham
Tags:
Clinical trial
Dates:
October 2019
December 2021

Researchers at the University of Birmingham would like to invite people with Type 2 diabetes, aged 40-80 years who manage their condition with diet, to take part in a study exploring the link between Type 2 diabetes and making too much of the stress hormone - cortisol.

Participants will be asked to attend one visit at the Queen Elizabeth Hospital Birmingham, lasting approximately 2 hours.

Help BEAT diabetes by taking part in research

Subtitle:
Helping people with diabetes get involved in a wide range of NHS research opportunities including patient and public involvement, questionnaires, focus groups and clinical trials
Institution:
NIHR Clinical Research Network Greater Manchester
Location:
The majority of research offered takes place in and around Greater Manchester
Tags:
Connect with researchers
Dates:
January 2020
January 2023

People with diabetes aged 18+ can register their details with Research for the Future to receive information about local NHS diabetes research opportunities. It’s free to join and doesn’t commit you to take part in any studies. 

Exploring experiences of compassion in healthcare

Subtitle:
Capturing Compassionate Care Research Study (CCARE Study)
Institution:
University of Bath
Location:
Online study
Tags:
Questionnaire
Dates:
November 2020
October 2021

Researchers at University of Bath would like to recruit people aged 18 or over who have attended a face to face, phone or video call healthcare appointment within the past month to take part in an online questionnaire that explores experiences of care and compassion from healthcare professionals. 

Take part in the survey or contact Ellen Huish for more information at eh301@bath.ac.uk

PROTECTing insulin-producing cells in children newly diagnosed with type 1

Subtitle:
A Phase 3, Randomised, Double-Blind, Multinational, Placebo-Controlled Study to Evaluate Efficacy and Safety of Teplizumab (PRV-031), a Humanised, FcR Non-Binding, anti-CD3 Monoclonal Antibody, in Children and Adolescents with Newly Diagnosed Type 1
Institution:
Provention Bio, Inc
Location:
England & Wales
Tags:
Clinical trial
Dates:
August 2020
July 2021

The PROTECT study is testing how well an investigational medicine, called teplizumab, works in children and adolescents with type 1 diabetes. Teplizumab is an immunotherapy. It works by retraining the immune system to halt its attack against the pancreas, so that it no longer destroys insulin-producing cells.

Testing a questionnaire to capture the needs of people with long-term conditions

Subtitle:
Validation of the living with chronic illness scale in an English-speaking population with long-term conditions
Institution:
University of Southampton
Location:
Online study
Tags:
Questionnaire
Dates:
November 2020
September 2021

Researchers at the University of Southampton would like to recruit people with type 2 diabetes to take part in a study that will help them to test out a questionnaire they've designed, called the Living with Long Term Condition Scale. 

Survey exploring young adults’ views on attending eye screening

Subtitle:
Survey exploring young adults’ views about factors influencing diabetic eye screening attendance in the UK
Institution:
City University of London
Location:
Online study
Tags:
Questionnaire
Dates:
June 2021
June 2021

Researchers at City University of London would like to invite people aged 18-34 years living with diabetes, to complete an online survey that explores a number of issues that may affect their attendance at diabetic eye screening and views on the screening process. The information you provide will help the researchers to make specific recommendations to improve the eye screening service.

Can exercise bring back hypo awareness?

Subtitle:
High Intensity Training as a novel treatment for impaired awareness of hypoglycaemia in type 1 diabetes
Institution:
University of Dundee
Location:
Scotland
Tags:
Clinical trial
Dates:
January 2020
January 2021

Researchers at the University of Dundee would like to recruit people with type 1 to take part in a study that's using high intensity exercise (short bursts of exercise that increase the heart rate) as a treatment for reduced awareness of low blood sugars.

To be eligible to take part you must:

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