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User Involvement Update

Involving people with diabetes to improve care

Two men sitting at table at event, one talking and one listening to him.

The user involvement team are here to ensure that the voices of people with or at risk of diabetes are heard and used to inform and improve the NHS diabetes programme.

Round-up of the year

2019 was a busy year for the User Involvement programme - here are some of the highlights. 

User Involvement Guidelines launched in the Northern region

We often hear from people working in diabetes that although they know that involving people affected by diabetes in their care and in shaping services is a priority, they find it difficult to know where to start or how to do it well.

In October, we launched new guidelines to support you to involve people affected by diabetes across the NHS Diabetes programme.

See the guidelines (PDF, 4.5MB)

The guidelines were co-produced by people affected by diabetes as well as clinical and non-clinical healthcare professionals in the Northern region through a series of engagement events last year. They contain 6 pledges - summarised as the 6Ps – each with a set of actions and top tips to help put them into practice.

The guidelines are already being used by individuals as well as CCGs, PCNs and the Northern region board.

Although the guidelines have been produced and launched specifically in the Northern region so far, the principles are relevant to other regions and we hope they will be useful to those working across England and beyond! This year, we will be monitoring how the guidelines are being used and evaluating their impact, as well as supporting other regions to adapt and adopt the guidelines.

If you have any questions, please get in touch at involvement@diabetes.org.uk

BAME engagement across the NHS Diabetes Programme

We want to make sure that everyone has the opportunity to be involved and that a diverse range of voices are heard and used to improve the programme.

Woman looking at the camera smiling

In November, we held a webinar to share case studies and tips on how we can more effectively work with people affected by diabetes from Black, Asian and Minority Ethnic (BAME) communities. The four case studies demonstrated examples of engagement with different audiences using different approaches:


If you missed the webinar, or want to see it again, you can watch it here:



Raising the profile of participants on the NHS DPP

The NHS DPP is supporting people across England to reduce their risk of diabetes.

4 people sitting at a table watching a coach at the front talking and holding a food pleate

It’s important that participants on the DPP can give feedback about their experience and that this is used to inform improvements in the programme.

We have developed and launched a new set of evaluation surveys that collect useful, improvement-focussed data from participants at 3 different stages of the programme. We are now working with the programme providers to support them to use this data to make changes that will benefit future participants.

Understanding people’s experiences of remission of type 2 diabetes

Recent evidence from clinical trials showed that some people can put their type 2 diabetes into remission using a Low Calorie Diet (LCD).

This year, NHS England & NHS Improvement are launching a pilot LCD programme across 10 sites to support more people to do this. We are working closely with the LCD pilot to make sure that it is informed by real experiences of people who have attempted to put their diabetes into remission, and that feedback those who take part is heard and used.

Share how you have involved people with diabetes

Have you involved service users in shaping, influencing or feeding back on diabetes services? Share an example of what you are doing and the impact it had, what you learnt in the process or questions you have to help others to improve their practice.

HCP walking outside alongside a patient talking

To share your case study, use the template below and email it back to us at involvement@diabetes.org.uk.

Download case study template (Word, 54 KB)

Stay connected

If you would like to be added to our mailing list to receive updates about user involvement in the Diabetes Programme, join our NHS DPP Participant Panel or if you have any stories, challenges or examples of user involvement to share with us, please get in touch at involvement@diabetes.org.uk


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